This story began like any other—until shortly after birth, when as a baby she started losing muscle tone and strength. She was soon diagnosed with Spinal Muscular Atrophy (SMA) Type I, a rare genetic condition that causes severe muscle weakness and difficulty with breathing and swallowing. Historically, many children with SMA didn’t live past age two, but new gene therapies offered hope— but at a staggering cost of $2.8 million and limited availability in Canada.

Her family fought tirelessly, entering a pharmaceutical lottery while fundraising on their own and exploring every possible option. Against all odds, they won the lottery for treatment, and thanks to an anonymous donor, they were able to help another family access the life saving gene therapy too. Since then, she has undergone two gene therapies and more than 15 surgeries. She will never walk independently, but she is determined, brave, and full of life.

Now six years old, she loves school, Volt hockey, drawing, coloring, and spending time outdoors with her family. She adores Disney princesses—especially Belle, who she sees as kind and courageous, and who loves her dad, just like herself. Her dream is to experience the magic of Disney World, meet Belle, and create unforgettable memories with her family.

Alberta Dreams is over the moon to send this amazing family on a trip of a lifetime to Disney World—where magic, laughter, and cherished moments await.